A Dose-Finding Study of Tebapivat to Assess Efficacy, and Safety in Participants With SCD

  • Research type

    Research Study

  • Full title

    A Phase 2, Double-blind, Randomized, Placebo-Controlled, Multicenter, Dose-Finding, Efficacy, and Safety Study of Tebapivat in Participants With Sickle Cell Disease

  • IRAS ID

    1011853

  • Contact name

    William Cook

  • Contact email

    Ex-Usmedinfo@agios.com

  • Sponsor organisation

    Agios Pharmaceuticals Inc.

  • Research summary

    Sickle cell disease (SCD) is a blood disorder passed down from parents to children. It affects a protein found in red blood cells (RBCs) called haemoglobin. The abnormal haemoglobin causes RBCs to change shape. These sickled RBCs can clump together and block blood flow around the body. When blood vessels become blocked, this can cause painful episodes called sickle cell pain crises (SCPCs). Over time, the damage caused by pain crises and haemolytic anemia can lead to serious problems such as kidney, heart, and liver disease.
    The study drug (called Tebapivat) attaches to a specific protein that may give red blood cells more energy and help more haemoglobin molecules bind to oxygen. These changes may reduce the opportunity for haemoglobin to stick together and form sickled cells, helping the body to improve red blood cell levels.
    The purpose of this study is to look at the efficacy (how well this drug works to treat and prevent complications) and safety of tebapivat when administered with standard treatment for SCD.
    About 56 participants worldwide will be enrolled into the study.
    The study will be run in two periods. In double- blind period, the participants will receive either tebapivat or placebo for 12 weeks and after completion, the participants can join the open-label extension period to receive tebapivat for up to 52 weeks.
    There will be several assessments (such as medical history, physical exams, vital signs, ECHO, ECGs, blood/urine samples, health questionnaires) to be completed at visits.

  • REC name

    London - Brent Research Ethics Committee

  • REC reference

    25/LO/0343

  • Date of REC Opinion

    29 May 2025

  • REC opinion

    Further Information Favourable Opinion