100,000 Genomes Project Bioresource - main phase

• Research type

  Research Tissue Bank

• IRAS ID

  166046

• Duration of Study in the UK

  years, months, days

• Research summary

  100,000 Genomes Project Bioresource (main phase)

• REC name

  East of England - Cambridge South Research Ethics Committee

• REC reference

  14/EE/1112

• Date of REC Opinion

  20 Feb 2015

• REC opinion

  Further Information Favourable Opinion

• Data collection arrangements

  The samples and data will be accrued from patients who give fully informed consent to clinical teams within NHS Genomics Medicine Centres. DNA and samples made stored locally prior to transfer to the nominated Genomics England Biorepository.

• Research programme

  Medical and scientific (and defined other) research programmes will be able to apply to use data and/or samples stored by the 100,000 Genomes Project in accordance with our Data Access and Acceptable Uses Policy and terms of the fully informed consent.

• Storage license

  n/a

• RTBTitle

  100,000 Genomes Project Bioresource (main phase)

• Establishment organisation

  Genomics England

• Establishment organisation address

  Dawson Hall

  Charterhouse Square

  London

  EC1M 6BQ