Supporting families before birth: a qualitative study
Research type
Research Study
Full title
Supporting families before birth: a qualitative study of parents’ and health care professionals’ experiences
IRAS ID
328653
Contact name
Sophie Bertaud
Contact email
Sponsor organisation
University of Oxford / Research Governance, Ethics and Assurance
Duration of Study in the UK
2 years, 0 months, 1 days
Research summary
When parents face the devastating news during pregnancy that their baby is affected by a life-limiting condition they rely on health care professionals for advice and support. These families are now increasingly being offered antenatal (before birth) palliative care. However, there are a number of ethical challenges to providing antenatal palliative care and there has been very little research in this area.
This research aims to better understand the experiences of families in this situation and to examine the ethical considerations in providing antenatal palliative care. We will examine what is said to parents in consultations during pregnancy and conduct interviews with both parents and health care professionals to understand the challenges they face.
The research findings from this project will lead to recommendations for professionals who work in antenatal counselling in order to enable compassionate and supportive care for parents.REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
23/LO/1008
Date of REC Opinion
12 Jan 2024
REC opinion
Favourable Opinion