Recruiting participants into health research
Published on 21 July 2015
The HRA has undertaken a large scale public engagement exercise focusing on dialogue between members of the public and health researchers around ways of identifying people to take part in health research. The discussions took place in November 2014 in eight workshops across England and Wales and covered a range of topics including:
- Who can access my patient notes to tell me that I might be eligible to take part in a study (YouTube video)
- Different ways in which people can register their willingness to take part in research
- Simplifying the consent process in clinical trials of already licensed products (YouTube video)
The workshops were supported and part-funded by Sciencewise which encourages public debate about scientific issues.
The dialogue with the general public was carried out by independent research organisation OPM. 110 members of the public were brought together with more than 30 researchers and patients to discuss in-depth, and where possible reach conclusions, about the social, ethical and practical issues raised by policies on recruiting suitable participants for health research.
- A summary of the findings can be found on the HRA website
- The full report can be found here
- Participants reflect on taking part in the project (YouTube video)
This information will feed into forthcoming guidance on identifying and recruiting participants in health research together with new guidance on proportionate approaches to consent.
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