Dr Mark Taylor (Establishing Chair)
Dr Mark Taylor is a Senior Lecturer in the School of Law and Deputy Director of the Sheffield Institute of Biotechnology, Law and Ethics (SIBLE) at the University of Sheffield. He specialises in health information law, privacy and legal and ethical conceptions of the public interest.
Mark is a member of the Ethics, Regulation and Public Involvement Committee (ERPIC) for the Medical Research Council, a member of the National Data Guardian’s Panel, a member of the Ethics Advisory Group for Genomics England, and is also currently acting as external legal consultant to the OECD.
Dr Taylor is seconded on a part-time basis to the Health Authority as an advisor on data policy. This role is separate to his role with the CAG. He is supporting work on the information governance aspects of the HRA approvals programme and also advises on a project to describe good practice alternatives to identify potential research participants.
Dr Martin Andrew has recently retired after 30 years as a GP in Derbyshire. His particular interests are cardiovascular medicine, clinical governance and the care of patients with mental health problems. He was clinical governance lead ( covering quality and patient safety) for Derbyshire County PCT and in recent years has been involved in commissioning healthcare. He has an interest in GP clinical computer systems and also the effectiveness and security of communication between primary and secondary care.
Dr William Bernal trained in General Medicine, Hepatology and Intensive Care Medicine and is a Reader in Liver Intensive Care Medicine in the Liver Intensive Therapy Unit at the Institute of Liver Studies at Kings College Hospital, London. His research interests include the care of patients with liver failure and the use of emergency liver transplantation, and he has extensive experience in research in emergency situations and in practical issues of consent. With interests in clinical, research and information governance he serves as Caldicott Guardian and Assistant Medical Director for his NHS Trust.
Dr Kambiz Boomla
Dr Kambiz Boomla has been a general practitioner in Tower Hamlets, London since 1982, and is a senior clinical lecturer in the Clinical Effectiveness Group at Queen Mary University of London. He has chaired the Information Governance Committee of Tower Hamlets Primary Care Trust for some years, and has been GP Clinical Lead for IM&T in City & East London. He has until recently chaired the City & East London Local Medical Committee. His work at the Clinical Effectiveness Group promotes primary care development, through the use of locally tailored guidelines, audit, and practice based education. The group is also involved in post-graduate education and research related to the delivery of high quality care for patients with chronic disease. This work involves the extraction of pseudonymised data from GP clinical systems using new web based technologies.
Sophie Brannan is a senior ethics adviser in the medical ethics department of the British Medical Association. In this role she leads the development of BMA policy on confidentiality and information governance matters – specifically the question of how to achieve an appropriate balance between protecting confidentiality and making use of health information to benefit patients and the wider health service. She also provides specialist advice to doctors on the law, ethics and regulatory requirements in this area; including writing the BMA’s published material on confidentiality and management of health records.
Dr Tony Calland
Dr Tony Calland is a retired general practitioner who worked on the Welsh border for 34 years. He has been a non executive director of Gwent Health Authority and also Chairman of three major BMA committees including currently the Medical Ethics committee. He was part of the BMA GP team which negotiated the new GP contract in 2003. He has an interest in information governance and is involved in these matters in England and in Wales.
Ms Hannah Chambers (Lay)
Hannah, who is also a member of the Liverpool Central REC, brings an independent lay voice. She takes a keen interest in external activities and, until recently was a key member of her local Patients’ Participation Group. Following four years with Barnardo’s, she trained as a nurse at Great Ormond Street and in Guildford. She has held Ward Sister posts in Oncology and Paediatrics. Following an accident she became a Clinical Teacher at GOS and since has had a number of roles including Research Nurse in Psychiatry and at the Arthritis and Rheumatism Council Epidemiology Research Unit. She became a Health Promotion specialist for Schools and Nurse Leader and Advisor to the Board in Powys Health Care Trust. Having retired from the NHS; Hannah became Development Manager and acting Director in Wales for ‘Pyramid’, a charity providing an intervention in schools for children with social and emotional difficulties.
Dr Patrick Coyle
Dr Patrick Coyle is retired from the Clinical Governance Support and Development Unit of the Welsh Assembly Government and was formerly Medical Director of the Glan-y-Mor NHS Trust and Bro Morgannwg NHS Trust and Consultant Surgeon at Neath General Hospital. Patrick was Chair of the Security and Confidentiality Advisory Group before it became the DMsG in April 2008. He is a member of the Welsh Information Governance Board and chairs the Welsh Privacy Advisory Committee.
Barry has a background within the Communicable Disease Surveillance Centre (CDSC) within the Public Health Laboratory Service (from 2003 onwards within the Health Protection Agency) and was instrumental in developing the original requirements for Regulation 3 and previously used to engage with PIAG in terms of HPA reporting. He was also responsible for HIV surveillance and reporting of HIV and AIDS cases and currently consults within Public Health England on a part-time basis. Professor Evans is currently on a break of service until approximately April 2016.
Dr Lorna Fraser is a Senior Lecturer and NIHR Fellow in Epidemiology in the Department of Health Sciences at the University of York. She studied medicine at the University of Aberdeen and was a paediatrician in Scotland before becoming an academic. Lorna undertook an MSc and PhD at the University of Leeds. Lorna’s main research interests are the epidemiology of chronic disease in children especially life-limiting conditions and the equitable provision of services for these children. Dr Fraser has a good understanding of both the importance of patient confidentiality and the necessity for high quality robust research to improve the quality of life and the quality of care for our population.
Mr Anthony Kane (Lay)
Mr Tony Kane is a retired chief superintendent with Greater Manchester Police, having served as divisional commander and director of diversity. He also has NHS experience as a non-executive director with Oldham PCT and as shareholder director of Oldham Liftco. Tony is engaged in promoting sporting activity for disadvantaged young people in the local community.
Kim Kingan is an experienced Nurse and Midwife with over 17 years knowledge and practice of compliance, ethics, and information governance in government, NHS and private sector. Kim has a wide range of healthcare experience, having held a range of clinical and managerial roles, as well as acting as an advisor to organisations in the UK, Middle East and Australia.
She currently works for UCL Partners, Academic Health Science Partnership, where she actively supports health and academic organisations to design and implement mechanisms to safely handle data.
Kim`s special interest include patients’ rights; particularly the information available to patients about the collection and use of their data.
Dr Rachel Knowles is a paediatric epidemiologist and consultant in public health medicine, working at the Institute of Child Health, University College London. Her research has focused on newborn screening and outcomes for children with rare and congenital conditions. She was an expert member of Bloomsbury Research Ethics Committee and is Medical Adviser to the British Paediatric Surveillance Unit, which supports paediatric rare disease surveillance studies across the UK and Republic of Ireland.
Professor Jenny Kurinczuk
Professor Jenny Kurinczuk is a perinatal epidemiologist, Director of the National Perinatal Epidemiology Unit and Co-Director of the Department of Health funded Policy Research Unit in Maternal Health and Care at the University of Oxford. Following medical training and postgraduate training in epidemiology and public health her research career has been focused primarily on the health of mothers and babies, risks to their health, and research in policy and practice to improve health outcomes.
Andrew Melville worked in local authority social care for 38 years before retiring in 2010. He worked in a variety of operational, management and project posts in both adult and children’s social care. In later years this was about business transformation, developing processes and information requirements to support organisational change, including electronic social care recording, practice development and training of social workers and managers, and pilot services involving the integration of health and social care. Andrew recognised the importance of the appropriate use of information and data in such work for the benefit of those in receipt of services. To that end, he is currently involved with Armed Forces Veterans in Yorkshire and Humber concerning their information needs and requirements and developing communications.
Ms Clare Sanderson
Claire Sanderson is an independent consultant and used to work at the Health and Social Care Information Centre (HSCIC). Clare was the Executive Director of Information Governance at HSCIC’s predecessor, the NHS Information Centre, for seven years and as such she has extensive knowledge and expertise in the legal and information governance issues affecting the use of health records, including s251 of the NHS Act 2006.
As well as being a Director of the London Care and Support Forum (LCAS) David is the CEO of Care and Support West, a Trade Association representing care providers across Bath, Bristol, North Somerset and South Gloucestershire. David has consulted directly in the care provision sector (Registered Residential, Supported Living and Domiciliary) and supported both registered managers and owners of care homes and domiciliary care to develop better “user focused” practice and improve their management systems and business acumen.
He practiced as a social worker for 16 years and was employed in two different London Social Services Departments as a team manager and later as an Assistant Director where he managed all the adult services. David set up Phoenix Re-Solutions (a health and social care consultancy organisation) in 1996 and has applied his consultancy skills to the social and health care arena where his experience in the earlier Community Care changes has been relevant to the current push towards integrated Local Authority and Primary Care Trust (now CCG’s) health and social care services.
Dr Murat Soncul completed clinical training in dentistry and worked as an oral surgeon before completing his PhD in 2002 at University College London researching the reliability of healthcare technology to support oral and maxillofacial surgical planning. He joined South London and Maudsley NHS Foundation Trust in 2003 to co-ordinate the e-Health Programme. He currently works as the Head of Information Governance in the same Trust. Murat is also leading the information governance working group to enable the Local Digital Roadmap for Our Healthier South East London transformation programme. In the past, he served as the Company Secretary and the Chair of the Board of Trustees at the Metro Centre, which is a London-based charity that promotes the health and well-being of all people experiencing issues related to sexuality, identity or gender. Murat’s professional interests include innovative uses of information technology to improve healthcare service delivery and patient experience, fair and lawful use of patient information, privacy and confidentiality, capacity and consent, cyber security and risk management.
Mr C. Marc Taylor
Marc Taylor is an independent advisor on the management, governance and regulation of research in health and social care. He is Vice Chair of the UK Research Integrity Office and Chair of ISRCTN Ltd, which provides the UK’s public register of clinical trials. Before retiring from the Department of Health in 2011, Marc led reforms in the regulation, governance, management and funding systems for health research in England. Having run the review in the 1990s which led to a national budget for NHS R&D in England, Marc helped to pave the way for the British Department of Health to create the National Institute for Health Research (NIHR). He led the implementation of a framework of research governance in health and social care, including a national system of research ethics committees, procedures to streamline local research management, and preparations to establish the Health Research Authority. He initiated the national programme that led to the Clinical Practice Research Datalink. He was a member of the board of UK Biobank. Earlier in his civil service career, Marc worked for the Foreign and Commonwealth Office and on the British overseas aid programme, developed government policy on NHS finance and capital investment, and was Director of Finance at a DH executive agency.
Ms Gillian Wells (Lay)
Gillian Wells has worked for 25 years as Manager and Chief Executive in the Voluntary and Health Sectors and is a Non Executive Director and Chair of the Serious Incident Committee for Kent and Medway NHS. As a Consultant in organisational development and health promotion she works with local and international public health and research programmes. Gillian has specific interest in projects and research focusing on improving older people’s quality of life.
Dr Malcolm G Booth
Consultant anaesthetist and intensivist at Glasgow Royal Infirmary since 1995. Previous Vice-Chair Scotland A Research Ethics Committee whose responsibilities included reviewing research involving adults with incapacity. Current Chair of West of Scotland REC 1. Immediate past Chair of European Society of Anaesthesiology Scientific Subcommittee on Ethics.
Diana Robbins has spent most of her career working as an independent policy analyst and evaluator. She has worked for central and local government, arms-length bodies, and third sector organisations, as well as for the European Commission. Her focus has been on health and social care, poverty and equalities. She has been consistently interested in the theory and practice of involving people who use services, their carers and the general public in the development and implementation of policy.
Diana was for some years a Non-Executive Director of the South London and Maudsley NHS Foundation Trust. She also reviewed research applications to the NIHR from a Lay/public engagement perspective for the past six years. Most recently, she was Lay Member with responsibility for Public Engagement on the governing body of the Lewisham Clinical Commissioning Group, and in this role was very aware of public perceptions of and concern about data privacy.
Harvey Marcovitch trained in paediatrics at St. Mary’s Hospital London, Great Ormond Street Hospital, the Institute of Child Health neonatal unit at Hammersmith Hospital and Northwick Park Hospital & Clinical Research Centre, as well as Children’s Hospital Medical Center, Boston Mass. He was a consultant paediatrician in the UK from 1977 – 2001, latterly at Oxford Radcliffe Hospitals NHS Trust and was honorary senior clinical lecturer at the University of Oxford and postgraduate clinical tutor for North Oxfordshire. From 1994-2003, he was editor-in-chief of Archives of Disease in Childhood and was syndications editor for BMJ Publishing Group from 2001-7. He has also been editor in chief of Clinical Risk (Royal Society of Medicine Press) and currently edits Black’s Medical Dictionary. He has been chairman of the Committee on Publication Ethics, director of the Council of Science Editors (US) and a board member of the UK Research Integrity office.
He was either an officer or co-opted member of the executive committee of the Royal College of Paediatrics & Child Health throughout its first decade and was awarded its honorary Fellowship in 2007 ‘in recognition of outstanding contributions to the objects of the College.’ He was an associate of the General Medical Council, initially as a panellist and then as chairman of its Fitness to Practice Panels from 2001 followed by Tribunal Chair of the Medical Practitioners Tribunal Service until 2016. Harvey is chairman of the board of MacKeith Press, an academic publishing subsidiary of SCOPE.
Katie is a Sir Henry Welcome Postdoctoral Research Fellow at the London School of Hygiene and Tropical Medicine. Following a PhD in Statistics at the UCL Institute of Child Health, she has experience in the use of nationally representative, population-level administrative data for maternal and child health research. Katie is also a member of the London Queen Square Research Ethics Committee and is particularly interested in promoting the safe and transparent use of linked data to improve services.